@UniqueJulie
A little bit of life - Creativity - Positivity - Chronic disease - University 🌸
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Sjælden sygdom del 1 - Bryd tabuet
Podcast
·
Podcast
Sjælden sygdom del 1 - Bryd tabuet
Bryd Tabuet · Episode
Tæt på - Julie Christensen - Fibrodysplasia Ossificans Progressiva
Podcast
·
Podcast
Tæt på - Julie Christensen - Fibrodysplasia Ossificans Progressiva
Tæt på · Episode
Min sjældnefortælling - Sjældne Diagnoser
Min sjældnefortælling - Sjældne Diagnoser
Sjældne-fortælling med Julie Christensen som lever med den sjældne sygdom Fibrodysplasia Ossificans Progressiva
Et liv med Fibrodysplasia Ossificans Progressiva - Unique Julie
Et liv med Fibrodysplasia Ossificans Progressiva - Unique Julie
Hør min historie om et liv med Fibrodysplasia Ossificans Progressiva, en bindevævssygdom som gradvist omdanner mine muskler til knoglemasse
Webshop - Homemade By UniqueJulie
Webshop - Homemade By UniqueJulie
Forside
Forside
TV2 Dokumentar
TV2 Dokumentar
Artikel- Familie journalen
Artikel- Familie journalen
At Julie Christensens sygdom er uhelbredelig og kun rammer én ud af en million, har ikke fået hende til at give op. Hun er med i et medicinsk forsøg – med lovende resultater, og så vil hun gerne hjælpe andre med handicap eller svær sygdom.
Info om FOP (min sygdom)
Info om FOP (min sygdom)
Jeg lider af en kronisk bindevævsygdom kaldet Fibrodysplasia Ossificans Progressiva og I kan her på bloggen følge mit liv som kroniker
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