{"id":6018,"date":"2013-12-12T21:18:38","date_gmt":"2013-12-12T21:18:38","guid":{"rendered":"http:\/\/ireland-ms.com\/?p=6018"},"modified":"2013-12-12T21:18:38","modified_gmt":"2013-12-12T21:18:38","slug":"msirelandnatday","status":"publish","type":"post","link":"https:\/\/irelandms.com\/2013\/12\/12\/msirelandnatday\/","title":{"rendered":"MS Ireland National Meeting Day 2013"},"content":{"rendered":"<p style=\"text-align:justify;\">Last September, I was invited by the Irish MS Society to take part in a panel discussion <span id=\"b7c55e62-03e0-4160-b930-97e93a53d01d\" class=\"GINGER_SOFTWARE_mark\">at<\/span> their National Day in Galway. I happily accepted because we all know that I never say no to having a good chat.<\/p>\n<p style=\"text-align:justify;\">The topic of the National Day was &#8216;being active and interactive&#8217;, and the panel discussion covered employment, exercise, being online and volunteering. <span style=\"color:#339966;\"><strong><a title=\"Trevis Gleason\" href=\"https:\/\/trevislgleason.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Trevis Gleason<\/a><\/strong><\/span>, well-known in the MS stratosphere and a new addition<span id=\"122e7df6-7c3a-460f-b1da-1b51f30da26a\" class=\"GINGER_SOFTWARE_mark\"><\/span> to the Irish population, interviewed four people with MS: Grace, Anne-Marie, Mark and myself.<\/p>\n<p style=\"text-align:justify;\">These are the videos covering above topics. We were all a bit nervous (no, really?! :)) <span id=\"96135a3f-8e2c-4c0b-a513-29345cd711c3\" class=\"GINGER_SOFTWARE_mark\">because<\/span> of being filmed, but we all did very well.<!--more--><\/p>\n<p style=\"text-align:justify;\">In the first video, Grace O&#8217;Sullivan was interviewed <span id=\"956d9ed0-760a-4085-8af4-e5befc971816\" class=\"GINGER_SOFTWARE_mark\">on<\/span> employment and how it all went from being diagnosed to informing her employer. Trevis also interviewed <span style=\"color:#339966;\"><strong><a title=\"Anne-Marie McDaid\" href=\"https:\/\/www.independent.ie\/sport\/other-sports\/from-ms-diagnosis-to-fifth-in-world-26890759.html\" target=\"_blank\" rel=\"noopener noreferrer\">Anne-Marie McDaid<\/a><\/strong><\/span> on exercise. You might remember Anne-Marie <span id=\"97c4a08a-d713-4abb-a960-f7989b2f7cd8\" class=\"GINGER_SOFTWARE_mark\">winning<\/span> gold at the <span style=\"color:#339966;\"><strong><a title=\"2012 Summer Paralympics\" href=\"https:\/\/www.london2012.com\/\" target=\"_blank\" rel=\"homepage noopener noreferrer\">London 2012 Paralympics<\/a><\/strong><\/span>!<\/p>\n<p style=\"text-align:justify;\">[<a href=\"http:\/\/youtu.be\/UelII_C19SI\" target=\"_blank\" rel=\"noopener noreferrer\">http<span id=\"a91ffb54-22e5-44e6-a250-aea1e3ec45c2\" class=\"GINGER_SOFTWARE_mark\">:<\/span>\/\/<span id=\"e0937ee7-a00b-4202-9cc3-ca1c5eb52084\" class=\"GINGER_SOFTWARE_mark\">youtu<\/span><span id=\"bc0c8f9a-4719-4faa-a958-c397c0a398b1\" class=\"GINGER_SOFTWARE_mark\">.<\/span>be\/UelII_C19SI<\/a>]<\/p>\n<p style=\"text-align:justify;\">In the second video you get to hear me (oh <span id=\"22c37ade-7213-49b3-a64a-afe79a2fc7f4\" class=\"GINGER_SOFTWARE_mark\">goodie<\/span>&#8230;) talking about the good and the bad sides of being online.<\/p>\n<p style=\"text-align:justify;\">[<a href=\"https:\/\/youtu.be\/09tY7VKiF_0\" target=\"_blank\" rel=\"noopener noreferrer\">http<span id=\"de801d8e-33d4-4547-be4b-6445376ecb43\" class=\"GINGER_SOFTWARE_mark\">:<\/span>\/\/<span id=\"0ff6dece-7565-404a-8eb3-dfc5815dfaa7\" class=\"GINGER_SOFTWARE_mark\">youtu<\/span><span id=\"3b0b01e0-8aac-4455-a733-ca0600435b2e\" class=\"GINGER_SOFTWARE_mark\">.<\/span>be\/09tY7VKiF_0<\/a>]<\/p>\n<p style=\"text-align:justify;\">In video 3 you will see the interview Trevis had with Mark Mitchell, of legendary status in the Irish MS society environment because of all his volunteering. Mark is a fantastic inspiration to many and I was glad to finally have met him at the National Day.<\/p>\n<p style=\"text-align:justify;\">[<a href=\"https:\/\/youtu.be\/RGueVxmh4qo\" target=\"_blank\" rel=\"noopener noreferrer\">http<span id=\"414fc06b-d51e-475b-9fe6-803c69696326\" class=\"GINGER_SOFTWARE_mark\">:<\/span>\/\/<span id=\"4afef15e-c667-4566-b847-0eb73b90ed7a\" class=\"GINGER_SOFTWARE_mark\">youtu<\/span><span id=\"3a13b6ab-0997-4710-85c5-02168f67a288\" class=\"GINGER_SOFTWARE_mark\">.<\/span>be\/RGueVxmh4qo<\/a>]<\/p>\n<p style=\"text-align:justify;\">The last video is the end of the panel discussion and the start of questions and answers.<\/p>\n<p style=\"text-align:justify;\">[<a href=\"http:\/\/youtu.be\/m3TxhAfKq34\" target=\"_blank\" rel=\"noopener noreferrer\">http<span id=\"4d560ec9-d239-4caf-bbbc-5557a8117236\" class=\"GINGER_SOFTWARE_mark\">:<\/span>\/\/<span id=\"8569c66f-fdce-4df5-8634-0a27c4e06a99\" class=\"GINGER_SOFTWARE_mark\">youtu<\/span><span id=\"b5d466fd-b655-445f-b3ba-655c06e69c71\" class=\"GINGER_SOFTWARE_mark\">.<\/span>be\/m3TxhAfKq34<\/a>]<\/p>\n<p style=\"text-align:justify;\">If you want to see the presentations made by <span style=\"color:#339966;\"><strong><a title=\"Professor Alan Thompson\" href=\"https:\/\/www.ucl.ac.uk\/ion\/articles\/news\/20121018\" target=\"_blank\" rel=\"noopener noreferrer\">Professor Alan Thompson<\/a><\/strong><\/span> and <span style=\"color:#339966;\"><strong><a title=\"Dr Susan Coote\" href=\"https:\/\/www.youtube.com\/watch?v=pWWK2VxypGY\" target=\"_blank\" rel=\"noopener noreferrer\">Dr. Susan Coote<\/a><\/strong><\/span>, you can find the links <span style=\"color:#339966;\"><strong><a title=\"MS National Day 2013\" href=\"https:\/\/www.ms-society.ie\/pages\/what-we-do\/national-meeting-2013\" target=\"_blank\" rel=\"noopener noreferrer\">here<\/a><\/strong><\/span>. Info on the National Awards can be found <span style=\"color:#339966;\"><strong><a title=\"National Awards 2013\" href=\"https:\/\/www.ms-society.ie\/pages\/what-we-do\/national-awards\/2013-national-awards\" target=\"_blank\" rel=\"noopener noreferrer\">here<\/a><\/strong><\/span>. Big hurrahs for Elsie Ryan, <span id=\"c88b3f42-9a9b-48ee-be7e-294f4c03471b\" class=\"GINGER_SOFTWARE_mark\">Jerona<\/span> Jackson and Catherine Carrey!<\/p>\n<p style=\"text-align:justify;\">Great websites to check out and other information on having MS and an online life, please check out my blog post written after the National Day with links and valuable information: <span style=\"color:#339966;\"><strong><a title=\"Tips for people with MS on being active online\" href=\"https:\/\/irelandms.com\/2013\/09\/29\/being-interactive\/\" target=\"_blank\" rel=\"noopener noreferrer\">http:\/\/irelandms.com\/2013\/09\/29\/being-interactive\/<\/a><\/strong><\/span><\/p>\n<p style=\"text-align:justify;\">I want to thank MS Ireland for the continuous opportunities they give me to advocate on behalf of them and people with MS and other disabilities. Since day one the society has been fantastic support as well as full of good laughter.<\/p>\n<hr \/>\n<p style=\"text-align:justify;\">\u00a9Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis &amp; Me, 2011-2013. <span id=\"20343acf-fec2-460e-aba1-5d0379f04f13\" class=\"GINGER_SOFTWARE_mark\"><span id=\"c55c8828-ab90-4443-847a-fef849a42c3b\" class=\"GINGER_SOFTWARE_mark\"><span id=\"b6863df4-a7e2-4ce6-83c6-7998625781d2\" class=\"GINGER_SOFTWARE_mark\"><span id=\"ef449529-a01f-4fef-92f7-72a6c1fbedb1\" class=\"GINGER_SOFTWARE_mark\">Unauthorised<\/span><\/span><\/span><\/span> use and\/or duplication of this material without express and written permission from this blog\u2019s author and\/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis &amp; Me with appropriate and specific direction to the original content.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Last September, I was invited by the Irish MS Society to take part in a panel discussion at their National Day in Galway. I happily accepted because we all know that I never say no to having a good chat. The topic of the National Day was &#8216;being active and interactive&#8217;, and the panel discussion covered employment, exercise, being online and volunteering. Trevis Gleason, well-known in the MS stratosphere and a new addition to the Irish population, interviewed four people with MS: Grace, Anne-Marie, Mark and myself. These are the videos covering above topics. We were all a bit nervous (no, really?! :)) because of being filmed, but we all did very well.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[2,17,18],"tags":[227,266,343,414,418,533,648,748,769],"class_list":["post-6018","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-ms","category-multiple-sclerosis","tag-daily-post","tag-dublin","tag-galway","tag-internet","tag-ireland","tag-ms-ireland","tag-postaday","tag-susan-coote","tag-trevis-gleason"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","acf":[],"jetpack-related-posts":[{"id":19701,"url":"https:\/\/irelandms.com\/2017\/08\/13\/bestblogs2017\/","url_meta":{"origin":6018,"position":0},"title":"20 Best Personal Blogs about MS","author":"willeke73","date":"13 August 2017","format":false,"excerpt":"Personal blogs are a great way to get to see what is hiding behind the mask of life with MS. While each person with MS is different, writers often connect with readers on a shared human level, away from hospitals, neurologists and other physicians. These are some of the best\u2026","rel":"","context":"In &quot;Advocacy&quot;","block_context":{"text":"Advocacy","link":"https:\/\/irelandms.com\/category\/advocacy\/"},"img":{"alt_text":"Writing image","src":"https:\/\/irelandms.com\/wp-content\/uploads\/2017\/08\/write-with-style.jpg","width":350,"height":200},"classes":[]},{"id":5136,"url":"https:\/\/irelandms.com\/2013\/09\/26\/perfectionism\/","url_meta":{"origin":6018,"position":1},"title":"Perfectionism","author":"willeke73","date":"26 September 2013","format":false,"excerpt":"Banjaxed, tired high and wrecked. That\u2019s how yesterday unfolded. After being up till 3.30am writing, I managed to sleep only 3h. I was unable to sleep, and as a result, I was going over the things I still needed to do before Saturday\u2019s National MS Day in Galway. One of\u2026","rel":"","context":"In &quot;Blogging&quot;","block_context":{"text":"Blogging","link":"https:\/\/irelandms.com\/category\/blogging\/"},"img":{"alt_text":"Tumblr image","src":"https:\/\/irelandms.com\/wp-content\/uploads\/2013\/09\/tumblr_m4lrokpv4q1runs9po1_1280.jpg","width":350,"height":200,"srcset":"https:\/\/irelandms.com\/wp-content\/uploads\/2013\/09\/tumblr_m4lrokpv4q1runs9po1_1280.jpg 1x, https:\/\/irelandms.com\/wp-content\/uploads\/2013\/09\/tumblr_m4lrokpv4q1runs9po1_1280.jpg 1.5x"},"classes":[]},{"id":5148,"url":"https:\/\/irelandms.com\/2013\/09\/29\/being-interactive\/","url_meta":{"origin":6018,"position":2},"title":"Being active online","author":"willeke73","date":"29 September 2013","format":false,"excerpt":"It\u2019s two days after travelling 230km west for MS Ireland's National Meeting Day in Galway, Ireland. It was a fantastic day, and I learned a lot, but it was just as great being able to share information on how to be interactive when you have a mountain of free time\u2026","rel":"","context":"In &quot;Advocacy&quot;","block_context":{"text":"Advocacy","link":"https:\/\/irelandms.com\/category\/advocacy\/"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":13309,"url":"https:\/\/irelandms.com\/2015\/09\/10\/please-vote\/","url_meta":{"origin":6018,"position":3},"title":"PLEASE VOTE! MS Ireland company blog shortlisted!","author":"willeke73","date":"10 September 2015","format":false,"excerpt":"MS & Me, the group blog of MS Ireland for which I also write, has been shortlisted for the Blog Awards 2015 edition in the company Best Health and Wellbeing category! We need YOUR vote though to become a finalist. *** The PUBLIC VOTE\u00a0is now open for the\u00a02015 Blog Awards\u2026","rel":"","context":"In &quot;Awards&quot;","block_context":{"text":"Awards","link":"https:\/\/irelandms.com\/category\/awards\/"},"img":{"alt_text":"Blog_Awards_Shortlist_iPiccy_Painting","src":"https:\/\/irelandms.com\/wp-content\/uploads\/2015\/09\/blog_awards_shortlist_ipiccy_painting.jpg","width":350,"height":200},"classes":[]},{"id":5398,"url":"https:\/\/irelandms.com\/2013\/10\/17\/slowing-down\/","url_meta":{"origin":6018,"position":4},"title":"Slowing down","author":"willeke73","date":"17 October 2013","format":false,"excerpt":"A friend sent me this picture this evening as a reminder that I need to take a step back from writing, reading, advocating and generally helping others so I can \"get better\" again. We all know people with MS do not \"get better\" but I understood his reasoning... 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