The IBD Registry brings together health data from people with inflammatory bowel disease (IBD) across the UK to help improve treatment and care and support research.
We have been the IBD Registry for Crohn’s disease, ulcerative colitis and other types of IBD since 2012. From 2026 we will be part of NHS England as the National IBD Registry.
IBD is the first disease registry to join the Outcomes and Registries Programme. You can read more on the transition to NHS England here.
For IBD services
The IBD Registry enables IBD hospital teams to participate in quality improvement programmes. We use clinical data captured at the point of care to provide feedback on local service performance, as well as national insights.
For people with IBD
We can collect information about your diagnosis, treatment and care from your hospital team, and from you directly. This health data can then be analysed to highlight ways to improve IBD treatment and care. It can also support new research into IBD.
For researchers
Researchers can apply to access our data for projects that benefit people with IBD. We can support studies with our in-depth knowledge of the health data we collect, strong analytical skills and clinical and academic rigour.
For healthcare companies
The IBD Registry welcomes collaboration with healthcare companies on projects that seek to improve IBD treatment and care for people living with these conditions.
We work with more than 100 hospitals across the UK.
We have 3 separate databases available for new IBD research projects.
