Recommended by Hillary Johnson
Patient experiences and research into today's immune deficiency illnesses
The author has years of experience covering Myalgic Encephalomyelitis, first for the always-fascinating New York Native, a newspaper that was first to cover the AIDS crisis in the early 1980s, and later in three books she published on the subject. The Native was the only newspaper in history to have a full-time ME correspondent. Now, she's continuing her exploration of the politics and science of ME on Substack.
Myalgic Encephalomyelitis is a devastating debilitating disease. Diagnosis is not to be taken lightly. I contracted ME in 1989. Not only do I battle ME, I also battle the systemic bias by advocating for better understanding.
Colleen Steckel follows developments in the world of myalgic encephalomyelitis with particular attention to clinical and research definitions and to research itself. Meticulous coverage.