Support

Groups

Epilepsy Support Groups

Resource Center

Josh Provides hosts epilepsy support groups via Zoom on the first and third Tuesdays of the month at 6:30 p.m. One meeting each month is an “open discussion,” where members can share information and concerns, while the other meeting is an informational presentation about treatment options, medication, available devices and the importance of self-care. 

Contact: JoshProvides by email at: info@joshprovides.org  or call 800-706-2740.

Patient Organizations

Patient organizations aim to improve quality of life for individuals and their families who are affected by certain health conditions. Their objectives include raising public awareness of a disorder, dissemination of information about the disease and its treatment, and promotion of scientific research. Click on the links below to learn more about patient organizations across America who are involved in epilepsy research, treatment, and support.

Learn More
The Antiepileptic Drug Pregnancy Registry
Caregiver Action Network
  • Address: 1150 Connecticut Ave N.W., Suite 501. Washington, DC 20036
  • Contact: (202) 454-3970
  • Mission: Improve the quality of life for caregivers. Provides education, support, and resources.
  • Website: Visit the Caregiver Action Network website
CDC – Epilepsy
Child Neurology Foundation
  • Address: 201 Chicago Ave, Suite 200. Minneapolis, MN 55415
  • Contact: (612) 928-6325
  • Mission: Connect partners within the child neurology community to support disease management.
  • Website: Visit the Child Neurology Foundation website
Citizens United for Research in Epilepsy (CURE)
Dravet Syndrome Foundation
Epilepsy Foundation
  • Address: 8301 Professional Place W., Suite 230. Landover, MD 20785
  • Contact: (301) 459-2700; (800)-332-1000
  • Mission: Increase awareness and support for epilepsy through research, education, and advocacy.
  • Website: Visit the Epilepsy Foundation website
Family Caregiver Alliance/National Center on Caregiving
  • Address: 101 Montgomery St, Suite 2150. San Francisco, CA 94004
  • Contact: (415) 434-3388; (800) 445-8106
  • Mission: Improve the quality of life for caregivers through support and resources.
  • Website: Visit the Family Caregiver Alliance (FCA) website
Hope for Hypothalamic Hamartomas (Hope for HH)
Lennox-Gastaut Foundation (LGS Foundation)
National Organization for Rare Disorders (NORD)
NIH – Epilepsy
Rasmussen’s Encephalitis Children’s Project, LLC (RE Children’s Project)