Making rare diseases an every day conversation
Cambridge Rare Disease Network
Cambridge Rare Disease Network is a platform for change. It is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, and working together, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain.
Buildings supportive communities
We know that living with a rare disease can be scary, overwhelming and isolating.
We’re building a thriving network of individuals, families, advocacy groups and the professionals who work with them so they can engage, listen to and support each other better.
Building supportive communities for better patient outcomes.
Educating, connecting, collaborating
Rare diseases may be individually uncommon, but with almost 11,000 conditions affecting 400 million people worldwide, they are collectively significant.
Yet, only 5% have an available treatment—we’re determined to change that.
By bringing together leading scientists, cutting-edge technology, patients, and healthcare professionals, we’re driving progress toward faster diagnosis, new treatments and better care coordination.
RAREsummit26
Join us on Wednesday 7 October 2026 at Hinxton Hall Conference Centre
A flagship CamRARE event gathering 300 great minds in rare diseases to make connections, exchange ideas and openly debate possibilities.
With thanks to OUR CURRENT SPONSORS AND GRANT FUNDERS
