DS Action 2021 Survey

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We would like to better connect with our community. The questions below are mostly directed to self advocates and their families. However, we would appreciate hearing from all friends who support DS Action. Thank you for taking the time to fill out this survey. Your answers will help us in planning our future events and best serving the Down syndrome community.

Please share your name with us. (This is not required. We would appreciate your responses to this survey, even if you prefer to be anonymous. Thank you.)

We are updating our mailing and text lists. Would you like to provide us with your email and phone number?

Do you/your family prefer attending events in person or virtually at this time?

Yes

I prefer virtual events

I don't feel comfortable attending, but I still want to support DS Action

I'm fine with attending events in person, but sometimes virtual events are preferred.

Anders:

When would you prefer to attend seminars or webinars?

Weekdays - Daytime

Weekdays - Evening

Weekends - Saturdays

Anders:

Selectie wissen

What types of events interest you the most? (Select all that apply.)

Social Gatherings with other friends/families

Parent Social Outings

Health and Wellness & Fitness Activities

Parent Support Group

Webinars and Informational Sessions

World Down Syndrome Day or Down Syndrome Awareness Events

Comedy Ball - DS Action's annual themed comedy & entertainment fundraiser

Golf Fundraiser

A Ride of Inspiration - Poker Ride Fundraiser and Community event

Climbing to New Heights for Down Syndrome - indoor rock climbing event

Mommy/Daddy and Me group - for parents and children 0 - 5 years

Social opportunities for self advocates ages 6 - 12

Social activities for TEEN self advocates

Social events/activities for ADULT self advocates

Easter Egg Hunt at Point Loma Nazarene University

Sporting Events - Padres or Gulls games

Anders:

Are there any events that you wished were available? If so, please provide your suggestions.

Are there any specific topics that you would like to have DS Action offer for our future webinars/seminars? (Select all that apply)

Early Intervention

Medical Concerns (please see next question for specifics)

Occupational Therapy

Physical Therapy

Speech/Communication

Behavior

Down syndrome/Autism - dual diagnosis

Elementary School

Middle School

Puberty, Dating or Relationships

High School

Adult transition - Programs or Post Secondary Education

Conserveratorship

Special Needs Trusts

Safety/Emergency Preparedness

Independent Living for Adults

Anders:

What specific medical concerns would you like to learn more about? (If we have missed any topics, please select "other" and add your comments.)

Feeding Concerns

Behavior challenges - wandering, obsessive compulsive, stubborn/oppositional, more..

Down syndrome/Autism - dual diagnosis

Vision

Hearing

Dental / Orthodontia

Cardiology

Celiac disease / Gastrointestinal concerns

Thyroid

Blood disorders

Dementia

Autoimmune disorders

Respiratory issues

Mental health - Anxiety, depression, self talk, other concerns or questions

Anders:

Would you be interested in volunteering? If so, please share your interests in the next question.

Yes

Maybe

Anders:

Selectie wissen

If you would like to volunteer, what are your interests?

Administrative assistance - newsletter, information gathering, project research, etc.

Event Planning or Day of Event Support

Fundraising

Marketing

Advisor / Guest Speaker

Anders:

We are always looking for new partners/professionals in the community to support DS Action's efforts with our programs, including the Down Syndrome Center at Rady Children's Hospital. If you or someone you know might be interested in becoming a sponsor, guest speaker or business/community supporter, please share their contact information and we will reach out. Thank you!

Would it be alright to follow up with you regarding your submitted answers?

Yes

Selectie wissen

How you would like to be contacted regarding future DS Action events (phone numbers, preferred emails, text, etc.)?

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