Click here to forward this email to a friend.

October 2024

Exciting Progress in 2023: HDSA Annual Report Now Available

We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA. Together, we expanded the HDSA Centers of Excellence to 56 clinics and 11 partner sites, increased our social worker network, invested $3 million in critical research, and launched the groundbreaking POWERHD initiative. Every milestone reached is a reflection of your unwavering support and dedication to our mission!

These successes are shared by all of us, and we invite you to read the full report and watch the videos that showcase how your contributions are making a real difference for HD families. Thank you for helping us build a brighter future for those affected by Huntington’s disease!

CLICK HERE TO VIEW THE 2023 HDSA ANNUAL REPORT!

🌼 **Exciting News: The 2024 HDSA Amaryllis Campaign Launches on October 18!** 🌼

Get ready to spread hope this fall! With every purchase of beautiful amaryllis bulbs, you’ll be supporting the Huntington’s Disease Society of America (HDSA) as 50% of the sales go directly to our mission. This year, we’re thrilled to introduce a new case of 6 kit variety, perfect for sharing the joy of blooming flowers with friends and family! Plus, each purchase can be credited to a chapter, affiliate, or region of your choice, ensuring your support makes an even greater impact.

Help us make a difference and watch hope blossom!

Visit HDSA.org/amaryllis to explore our online store starting October 18.

Thank you for your support!

ADVOCACY UPDATE

Join Us for the HDSA Externally-led Patient Focused Drug Development Meeting!

We're hosting an important event focused on Pre-Symptomatic and Early to Mid-Stage Adult Onset HD, and we want YOU to be a part of it! Whether you attend in-person or virtually, this is your chance to share your experiences with the FDA, researchers, and medical product developers.

Date: November 13, 2024

Location: Virtual

Two panels will feature individuals and family members living with pre-symptomatic, early, and mid-stage HD, sharing their powerful stories. The rest of the meeting is dedicated to YOU—providing a platform to share your experiences and preferred treatment outcomes for new therapies.

How to Participate:

Submit an application to attend the meeting virtually. All Virtual Participants must submit an application.

Apply Today! https://forms.office.com/r/XuPAgMfYfS

Don't miss this opportunity to make your voice heard and contribute to the future of HD treatment!

HD Symptoms and Treatment Impact Survey

Calling all members of the HD community! Your input is crucial in shaping the future of treatment and care for Huntington's Disease. By taking this first-of-its-kind survey, you have the power to directly inform the FDA, NIH, and medical product developers. Make your voice heard and join us in creating a better future for everyone affected by HD.

CLICK HERE TO TAKE THE SURVEY!

HDSA VOLUNTEER SPOTLIGHT

Introducing the HDSA Volunteer Spotlight! Visit the new section on our website to meet the incredible volunteers who tirelessly support our mission. Each month, we’ll highlight a new volunteer and their inspiring contributions. Join us in celebrating their dedication and hard work!

CLICK HERE TO VISIT OUR WEBSITE!

POWERHD

POWERHD is the most comprehensive patien-driven Huntington's disease data collection initiative. Together we can accelerate research for new therapies.

To sign up for POWERHD in 3 easy steps:

Visit the website: Go to the POWERHD.org, where you'll find more information about participating in the program.
Complete the enrollment form: You may need to provide details such as your contact information, medical history, or HD diagnosis.
Confirm your participation: After submitting your information, you’ll receive a confirmation email or notification with further instructions on how to engage with POWERHD and contribute data for research.

CLICK HERE TO START TODAY!