Connect, Support, Chat
Anyone, regardless of location, is welcome to join our topic-specific groups!
Connection groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life.
All ALS Network groups are facilitated by our professional Care Managers, who have extensive experience in ALS. With many monthly options to choose from, our goal is to provide support that is convenient for you and your loved ones.
What You Can Expect
- Tips and practical solutions for navigating the everyday challenges of living with ALS.
- Resources for exploring options and making decisions throughout the disease process.
- Connection and support from other people living with ALS, caregivers, and loved ones.
Some topic-specific groups we offer include:
- Caregiver/Loved Ones
- Veterans
- Trach and Vent
- Living with ALS Under Age 50
- Familial Diagnosis
- General ALS
- LGBTQIA+
- Español
- Yoga
- Bereavement
Groups are offered free-of-charge and are open to people with ALS, caregivers, family members, and friends.
Questions?
Contact us for more information at 1-866-750-2572 or careservices@alsnetwork.org.
Upcoming Meetings
Events
Calendar of Events
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1 event,
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted… |
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1 event,
Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register,… |
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1 event,
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
2 events,
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! 
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat Please contact Regional Care Manager Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier,… |
2 events,
Trach and Vent: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843… 
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org |
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1 event,
Turlock/Central Valley: Connect, Support, Chat We will be joined by Allison Nadeau, Director, Public Policy and Advocacy for ALS Network. Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT,… |
3 events,
Connect, Support, Chat: All Area Group Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsagoldenwest.org 
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org 
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org |
2 events,
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! 
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat will not meet this month. The next meeting will be in May. Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please… |
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4 events,
Riverside County: Connect, Support, Chat Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org Connect, Support, Chat: Riverside County Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org 
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org |
1 event,
SoCal Community: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677 |
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7 events,
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group… 
Living with ALS Under 50: Connect, Support, Chat This group will focus on the special needs and challenges people living with ALS under the age of 50 and families during…
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Please join us on Tuesday, April 21, for our next webinar, “ASK ME: Cutting-Edge ALS Research — 2026 Packard Center Symposium Review,” at 12:00 PM PT / 9:00 AM HST. Hosted… |
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2 events,
Ventura/Santa Barbara: Connect, Support, Chat will meet in person this month at the Genealogical Society, 316 Castillo St, Santa Barbara, CA 93101. Please contact Morgan for information. Facilitator: Morgan McDonald, LVN… 
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org |
4 events,
SoCal Loved Ones: Connect, Support, Chat Please contact Regional Care Manager Crystal Galvan, RRT for information on how to participate via Zoom at 747-284-3003 or cgalvan@alsnetwork.org 
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395;… 
Connect, Support, Chat: SoCal Loved Ones Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org |
2 events,
San Luis Obispo: Connect, Support, Chat Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org Note: The group meets monthly… 
Monterey Bay: Connect, Support, Chat Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org Note: The group meets monthly on different… |
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2 events,
This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits… 
PLS: Connect, Support, Chat For information on how to participate via Zoom, contact Facilitator: Trung Ton at 510-753-0395 or tton@alsnetwork.org |
1 event,
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org |
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1 event,
Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register,… |
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“An ALS support group is really just a camaraderie of amazing people, many of whom are dealing with the same issues, who share information. We form strong friendships with each other and with our families about our shared experiences.”
- Julianne Angel